Lidia
Written by: Ysabel Fuentes, P2P Coordinator
Mi nombre es Lidia López y estoy casada con Jacinto Pérez García , juntos tenemos dos hijas: Itsaé de 7 años y Dalila de 5 años. Este episodio de mi vida comenzo hace 12 meses cuando a mi esposo se le revento un aneurisma en el cerebro; el tenia una malformación arteriovenosa desde el nacimiento y nunca habia presentado sintomas.
Un dia cualquiera saliendo del trabajo rumbo a su casa se desmayo, lo llevaron al hospital de Richland y de ahí se decidio trasladarlo a Harbor Regional Health Grays en Seattle, su estado de salud era crítico, él estuvo sedado por más de 5 días esperando que la presión en la cabeza bajara. Para reducir la presion del cerebro le abrieron el cráneo durante nueve días y le pusieron una bomba directo al estomago para drenar el liquido acumulado. Por estar acostado sin movimiento le dio pulmonia y tuvieron que hacer una traqueotomia; tambien fue necesario instalarle un tubo gastrointestinal para alimentarlo. Tambien se le presento un coágulo en la pierna y tuvieron que empezar a darle anticoagulantes para que no se agravara. Cada instante que pasaba la angustia me consumia. No sabíamos si íbamos a salir del hospital con él con vida o casi sin vida los doctores fueron muy claros al decir que él podía podía depender de por vida de una máquina de oxígeno, y en caso de que no le redujeran la presión en la cabeza podía morir. Gracias a Dios nos hizo el milagro, salio del peligro de muerte, pero cuando salio del hospital el desempeño de el era como el de un bebe, dependia totalmente de mi, y solo podia ser transportado en camilla. Sabia que estaba vivo porque abria sus ojos, no tenía reacción a nada, no se podía comunicar de ninguna manera, no reaccionaba ni al tacto. Yo necesitaba de mucha ayuda para moverlo.
Agradezco a mi cuñado Elodio quien ha venido a apoyarnos ya que El paso a ser el preveedor principal de nuestra familia. Jacinto y yo habiamos decidido como pareja que yo seria ama de casa para cuidar a las niñas por los primeros cinco años de sus vidas. Y ahora aunque quisiera trabajar, me dedico a cuidar de el, las 24 horas del dia los 7 dias de la semana, lo llevo por las mañanas a sus terapias, cuatro dias por semana. Nos ha cambiado la vida de muchas maneras. No tenemos la opcion de contratar a un cuidador por nuestra situacion dentro del pais, es dificil. Gracias a las terapias del habla, ocupacional y fisica ya camina. Recientemente han detectado los doctores que su vision es baja.
Gracias al trabajo de Jacinto pudimos ahorrar, no mucho verdad pero por lo menos para la renta y con Elodio, tampoco le podemos dejar todo, él también tiene sus propios gastos.
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My name is Lidia López and I am married to Jacinto Pérez García . Together we have two daughters: Itsaé 7 years old and Dalila 5 years old. This episode of my life began 12 months ago when my husband burst an aneurysm in his brain; he had an arteriovenous malformation since birth and had never presented symptoms.
One day as he was leaving work to go home he fainted. They took him to the hospital in Richland and from there it was decided to transfer him to Grays Harbor Regional Health in Seattle. His health condition was critical. He was sedated for more than 5 days, waiting for the pressure in his head to drop. To reduce the pressure in his brain they opened his skull for nine days and put a pump directly into his stomach to drain the accumulated fluid. Because he was lying down without movement he got pneumonia and they had to do a tracheotomy. It was also necessary to install a gastrointestinal tube to feed him. He also developed a clot in his leg and they had to start giving him anticoagulants so that it would not get worse. Every moment that passed the anguish consumed me. We did not know if we were going to leave the hospital with him alive or almost lifeless. The doctors were very clear in saying that he could depend for life on an oxygen machine, and if they did not reduce the pressure in his head he could die. Thank God he did the miracle for us. He came out of the danger of death, but when he left the hospital he was like a baby. He depended totally on me, and he could only be transported on a stretcher. I knew he was alive because he opened his eyes, but he had no reaction to anything. He could not communicate in any way. He did not react even to touch. I needed a lot of help to move him.
I thank my brother-in-law Elodio, who has come to support us. He has since become the main provider of our family. Jacinto and I had decided as a couple that I would be a housewife to take care of the girls for the first five years of their lives. Now even though I would like to work, I dedicate myself to taking care of him, 24 hours a day, 7 days a week. I take him in the mornings to his therapies, four days a week. He has changed our lives in many ways. We do not have the option of hiring a caregiver because of our situation within the country. It is difficult. Thanks to speech, occupational and physical therapies he is already walking. Recently doctors have detected that his vision is low.
Thanks to Jacinto's work we were able to save, not much, but at least with Elodio enough for rent although he also has his own expenses.
